We are delighted to share the 'Lives of People with Profound and Multiple Learning Disabilities in the UK' survey, an important research project led by universities and third sector organisations across the UK. By seeking responses directly from family carers, the survey aims to build a richer, more accurate picture of the lives, experiences, support needs, and aspirations of people with PMLD and their families across the UK.
People with PMLD are among the most excluded and least represented members of our society, often experiencing complex health, communication, physical, and support needs. Ensuring their experiences, and those of their families are reflected in research is essential if we are to shape better policy, services, and opportunities for the future.
As a family carer, by taking part in this survey, you can help create valuable evidence that supports understanding, inclusion, and positive change. Every response contributes to a clearer picture of what life is really like for people with PMLD in the UK, and what needs to happen to improve outcomes and quality of life.

Find out more and take part here: www.pmld-survey.ac.uk Please share this post with your networks, colleagues, families, support organisations, and anyone connected to the PMLD community. Together, we can help ensure that the lives of people with profound and multiple learning disabilities are seen, heard, understood, and valued.

Partners and collaborators involved with this project include: 

The All Wales Forum of Parents and Carers of People with Learning Disabilities. 

 PAMIS (Promoting A More Inclusive Society) Positive Futures PMLD LINK Charity Learning Disability England

Jill Bradshaw Richard Hastings Paul Thompson Sue Caton Stuart Todd Peter Mulhall