Publications


Published articles


2020

Hughes-Mccormack, L.A., McGowan, R., Pell, J.P., Mackay, D., Henderson, A., O'Leary, L. and Cooper, S.A-. (2020) Birth incidence, deaths, and hospitalisation of children and young people with Down syndrome, 1990-2015: birth cohort study. GMJ Open, 10, e033770. (doi: 10.1136/bmjopen-2019-033770)(PMID:32241786)

Henderson A, Mcskimming P, Kinnear D, et al Changes over a decade in psychotropic prescribing for people with intellectual disabilities: prospective cohort study. 

Smith, G., Fleming, M., Kinnear, D., Henderson, A., Pell JP., Melville, C., Cooper, SA. (2020) Rates and causes of mortality among children and young people with and without intellectual disabilities in Scotland: a record linkage cohort study of 796 190 school children. BMJ Open; 

Dunn, K. , Rydzewska, E. , Fleming, M. , Cooper, S-A. (2020) Prevalence of mental health conditions, sensory impairments and physical disability in people with co-occurring intellectual disabilities and autism compared with other people: a cross-sectional total population study in Scotland. 

Kinnear, D., Rydzewska, E., Dunn, K., Hughes-McCormack, L., Melville, C., Henderson, A. and Cooper, S.-A. (2020) The relative influence of intellectual disabilities and autism on sensory impairments and physical disability: a whole‐country cohort of 5.3 million children and adults. Journal of Applied Research in Intellectual Disabilities, (doi: 10.1111/jar.12728)

2019

Rydzewska, E. , Hughes-McCormack, L., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) Age at identification, prevalence and general health of children with autism: observational study of a whole country population. BMJ Open, 9, e025904. (doi:10.1136/bmjopen-2018-025904) (PMID:31289063) (PMCID:PMC6629388)

Kinnear, D. , Rydzewska, E. , Dunn, K., Hughes-McCormack, L. A., Melville, C. , Henderson, A. and Cooper, S.-A. (2019) The relative influence of intellectual disabilities and autism on mental and general health in Scotland: a cross-sectional study of a whole country of 5.3 million children and adults. BMJ Open, 9(8), e029040. (doi:10.1136/bmjopen-2019-029040) (PMID:31462474)

Rydzewska, E. , Hughes-McCormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) Prevalence of sensory impairments, physical and intellectual disabilities, and mental health in children and young people with self/proxy-reported autism: observational study of a whole country population. Autism, 23(5), pp. 1201-1209. (doi:10.1177/1362361318791279) (PMID:30328695)

Rydzewska, E. , Hughes-Mccormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2019) General health of adults with autism spectrum disorders - a whole country population cross-sectional study. Research in Autism Spectrum Disorders, 60, pp. 59-66. (doi:10.1016/j.rasd.2019.01.004)

Dunn, K., Rydzewska, E., Macintyre, C., Rintoul, J., & Cooper, S. A. (2019). The prevalence and general health status of people with intellectual disabilities and autism co‐occurring together: a total population study. Journal of Intellectual Disability Research, 63(4), 277-285 https://doi.org/10.1111/jir.12573

Kinnear, D., Cooper, S-A., Sherriff, A., Macpherson, L., Finlayson, J., Ward, L., Henderson, A. (2019) Prevalence and associations of edentulousness in a cohort of adults with intellectual disabilities. Journal of Intellectual Disability Research https://doi.org/10.1111/jir.12628

McKernan-Ward, L., Cooper, S-A., Hughes-McCormack, L., Macpherson, L. & Kinnear, D. (2019) Oral health of adults with intellectual disabilities: A systematic Review. Journal of Intellectual Disability Research https://doi.org/10.1111/jir.12632

Kinnear, D., Cooper, S-A., Sherriff, A., Macpherson, L., Finlayson, J., Ward, L., Henderson, A. (2019) Prevalence and associations of edentulousness in a cohort of adults with intellectual disabilities. Journal of Intellectual Disability Research https://doi.org/10.1111/jir.12628

McKernan-Ward, L., Cooper, S-A., Hughes-McCormack, L., Macpherson, L. & Kinnear, D. (2019) Oral health of adults with intellectual disabilities: A systematic Review. Journal of Intellectual Disability Research https://doi.org/10.1111/jir.12632

Dunn, K., McConnachie, A., Jahoda, A. & Kinnear, D. (2019) Mental health and well-being of fathers with a son or daughter who has intellectual disabilities: A systematic review and meta-analysis. The British Journal of Psychiatry Open. [Accepted for publication]

Salim, E., Fleming, M., MaccKay, D., Henderson, A., Kinnear, D., Clark, D., King, A., McLay, J., Cooper, S-A. & Pell, J. Neurodevelopmental multimorbidity and educational outcomes of 766,244 Scottish schoolchildren. European Journal of Public Health, 29 (4).  https://doi.org/10.1093/eurpub/ckz185.164

2018

O'Leary, L., Hughes-Mccormack, L., Dunn, K. and Cooper, S.-A. (2018) Early death and causes of death of people with Down syndrome: a systematic review. Journal of Applied Research in Intellectual Disabilities, 31(5), pp. 687-708. https://onlinelibrary.wiley.com/doi/abs/10.1111/jar.12446 

Dunn, K., Hughes-Mccormack, L. and Cooper, S.-A. (2018) Hospital admissions for physical health conditions for people with intellectual disabilities: systematic review. Journal of Applied Research in Intellectual Disabilities, 31(S1), pp. 1-10 https://doi.org/10.1111/jar.12360

Rydzewska, E., Hughes-McCormack, L. A., Gillberg, C. , Henderson, A. , MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence of sensory impairments, physical and intellectual disabilities, and mental health in children and young people with self/proxy-reported autism - observational study of a whole country population. Autism, 1-9 (doi: 10.1177/1362361318791279) http://eprints.gla.ac.uk/165538/

Rydzewska, E., Hughes-Mccormack, L. A., Gillberg, C., Henderson, A., MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2018) Prevalence of long-term health conditions in adults with autism: observational study of a whole country population. BMJ Open 8, e023945 (doi: 10.1136/bmjopen-2018-023945) http://eprints.gla.ac.uk/165540/

Kinnear, D., Morrison, J., Allan. L., Henderson, A., Smiley, E. & Cooper. S.A. (2018) Prevalence of physical conditions and multi-morbidity in a cohort of adults with intellectual disabilities, with and without Down syndrome. Cross-sectional study. The British Medical Journal Open, 8(2), e018292 (doi:10.1136/bmjopen-2017-018292) http://eprints.gla.ac.uk/149247/ 

Bertelli, M.O., Cooper, S-A., Salvador-Carulla, L. (2018) Intelligence and specific cognitive functions in intellectual disability: implications for assessment and classification. Current Opinions in Psychiatry. 31, 88-95. http://eprints.gla.ac.uk/153705/

Melville, C.A., McGarty, A., Harris, L., Hughes-McCormack, L., Baltzer, M., McArthur, L.A., Morrison, J., Allan, L., Cooper, S-A. (2018) A population based study of the prevalence and correlates of sedentary behaviour of adults with intellectual disabilities. Journal of Intellectual Disability Research, 62, 60-71. http://eprints.gla.ac.uk/153442/

O’Leary, L., Hughes-McCormack, L., Cooper, S-A. (2018) Life expectancy and causes of death of people with Down syndrome: a systematic review. Journal of Applied Research in Intellectual Disabilities, DOI: 10.1111/jar.12446 [early on-line]. http://eprints.gla.ac.uk/159758/

Dunham, A., Kinnear, D., Allan, L., Smiley, E., Cooper, S-A. (2018) The relationship between physical ill-health and mental ill-health in adults with intellectual disabilities. Journal of Intellectual Disability Research, DOI: 10.1111/jir.12483. [Epub ahead of print]. http://eprints.gla.ac.uk/159234/

Krishnadas, R., Cooper, S-A., Nicol, A., Pimlott, S., Soni, S., Holland, A.J., McArthur, L., Cavanagh, J. (2018) Brain stem serotonin transporter availability in maternal uniparental disomy and deletion Prader-Willi syndrome. British Journal of Psychiatry, 212, 57-58. http://eprints.gla.ac.uk/150709/

Hanlon, P., Wood, K., Cooper, S-A., Allan, L., MacDonald, S. (2018) Long-term condition management in adults with intellectual disability in primary care: a systematic review. British Journal of General Practice Open,  DOI: 10.3399/bjgpopen18X101445 http://eprints.gla.ac.uk/158371/

Cooper, S-A., Smiley, E., Allan, L., Morrison, J. (2018) The incidence of unipolar and bipolar depression and mania in adults with intellectual disabilities. Prospective cohort study. British Journal of Psychiatry, DOI: 10.1192/bjp.2018.12. [Epub ahead of print]. http://eprints.gla.ac.uk/155626/

MacDonald, S., Lammie, C., MacArthur, L., Baltzer, M., Allan, L., Morrison, J., Cooper, S-A. (2018) Embedding routine health checks for adults with intellectual disabilities in primary care: Practice nurse perceptions. Journal of Intellectual Disability Research, 62, 349-357. http://eprints.gla.ac.uk/157596/

2017

Young-Southward, G., Cooper, S.-A., Philo, C. (2017) Health and wellbeing during transition to adulthood for young people with intellectual disabilities: A qualitative study. Research in Developmental Disabilities: 70 94-103 (doi:10.1016/j.ridd.2017.09.003) http://eprints.gla.ac.uk/147542/

Young-Southward, G., Philo, C., Cooper, S-A. (2017) What effect does transition have on health and wellbeing in young people with intellectual disabilities? A systematic review. Journal of Applied research in Intellectual Disabilities. 30 805-823 http://eprints.gla.ac.uk/121254/

Young-Southward, G., Rydzewska, E., Philo, C., Cooper, S.-A. (2017) Physical and mental health of young people with and without intellectual disabilities: Cross-sectional analysis of a whole country population: Journal of Intellectual Disability Research: 61 984-993 (doi:10.1111/jir.12422) (PMID:28895262) http://eprints.gla.ac.uk/147545/

Hughes-McCormack, L., Rydzewska, E., Henderson, A., MacIntyre, C., Rintoul, J. and Cooper, S-A. (2017) Prevalence and general health status of people with intellectual disabilities in Scotland-a population study, (Journal of Epidemiology and Community Health) http://eprints.gla.ac.uk/149460/

Hughes-Mccormack, L., Rydzewska, E., Henderson, A., MacIntyre, C., Rintoul, J. and Cooper, S.-A. (2017) Prevalence of mental health conditions and relationship with general health in a whole country population of 26,349 people with intellectual disabilities, compared with the general population. British Journal of Psychiatry Open Sep 2017, 3(5) 243-248; DOI: 10.1192/bjpo.bp.117.005462 http://eprints.gla.ac.uk/147296/

Cooper, S.-A. et al. (2017) Management and prevalence of long-term conditions in primary health care for adults with intellectual disabilities compared with the general population: a population-based cohort study. Journal of Applied Research in Intellectual Disabilities(doi:10.1111/jar.12386) (PMID:28730746) (Early Online Publication) http://eprints.gla.ac.uk/144625/

O’Leary, L., Hughes-McCormack, L., Cooper, S-A. (2017) Life expectancy and causes of death of people with intellectual disabilities: a systematic review. Journal of Applied Research in Intellectual Disabilities, DOI: 10.1111/jar.12417

Dunn, K., Hughes-McCormack, L. and Cooper, S.-A. (2017) Hospital admissions for physical health conditions for people with intellectual disabilities: systematic review. Journal of Applied Research in Intellectual Disabilities, (doi:10.1111/jar.12360) (PMID:28467010) (Early Online Publication) http://eprints.gla.ac.uk/141030/

Flynn, S., Hatton, C., Jahoda, A., Waite, J., Langdon, P., Hastings, R.P. Hood, K., Oliver, C., Roy, A., Cooper, S-A., Adams, D., McNamara, R., Vereenooghe, L., Core, N., Tosika, V. (2017) Measurement tools for mental health problems and mental well-being in people with severe or profound intellectual disabilities: A systematic review. Clinical Psychology Review, 57, 32-44. http://eprints.gla.ac.uk/146861/

Jahoda, A., Hastings, R., Hatton, C., Cooper, S-A., Dagnan, D., Zhang, R., McConnachie, A., McMeekin, N., Appleton, K., jones, R., Scott, K., Fulton, L., Knight, R., Knowles, D., Williams, C., Briggs, A., MacMahon, K., Lynn, H., Smith, I., Thomas, G., Melville, C. (2017) A randomised controlled trial comparing a behavioural activation treatment for depression in adults with intellectual disabilities with guided self-help. The Lancet Psychiatry, 4, 909-919. http://eprints.gla.ac.uk/151970/

Dunkley, A.J., Tyrer, F., Gray, J., Bhaumik, S., Spong, R.J.C., Chudasama, Y.V., Cooper, S-A., Ganghadaran, S., Davies, M., Khunti, K. (2017) Type 2 diabetes and glucose intolerance in a population with intellectual disabilities: the STOP Diabetes cross-sectional screening study. Journal of Intellectual Disability Research, 61, 668-681. http://eprints.gla.ac.uk/141721/

Alexander, R.T., Shankar, R., Cooper, S-A., Bhaumik, S., Hastings, R., Kapugama, C.L., Tromans, S.J., Roy, A. (2017) Antipsychotic prescribing in people with learning disability: challenges and pitfalls. British Journal of General Practice, 67, 372-373. http://eprints.gla.ac.uk/145446/

O’Leary, L., Hughes-McCormack, L., Cooper, S-A. (2017) Early death and causes of death of people with intellectual disabilities: A systematic review. Journal of Applied Research in Intellectual Disabilities, DOI: 10.1111/jar.12417 [Early on-line]. http://eprints.gla.ac.uk/149631/

2016

Melville, C.A., Smiley, E., Simpson, N., Johnson, P., McConnachie, A., Purves, D., Cooper, S-A. (2016) Statistical modelling studies examining the dimensional structure of psychopathology experienced by adults with intellectual disabilities. Systematic review. Research in Developmental Disabilities, 53-54, 1-10. doi.org/10.1016/j.ridd.2016.01.018 http://eprints.gla.ac.uk/116507/

Brugha, T.S., Spiers, N., Bankart, J., Cooper, S-A., McManus, S., Scott, F.J., Smith, J., Tyrer, F. (2016) Epidemiology of autism in adults across age groups and ability levels. British Journal of Psychiatry, In Press, 21.1.16. http://eprints.gla.ac.uk/119659/

Tweed, E.J., Mackay, D.F., Nelson, S.M. Cooper, S-A., Pell, J.P. (2016) Five minute Apgar score and educational outcomes: retrospective cohort study of 751369 children. Archives of Disease in Childhood, In Press, 27.7.15. http://eprints.gla.ac.uk/116162/

Melville, C. A., Johnson, P. C. D., Smiley, E., Simpson, N., Purves, D., McConnachie, A. and Cooper, S.-A. (2016) Problem behaviours and symptom dimensions of psychiatric disorders in adults with intellectual disabilities: an exploratory and confirmatory factor analysis. Research in Developmental Disabilities, 55, 1-13. (doi:10.1016/j.ridd.2016.03.007) (PMID:27018744) http://eprints.gla.ac.uk/118079/

Osugo, M., Cooper, S-A. (2016) Interventions for adults with mild intellectual disabilities and mental ill-health: a systematic review. Journal of Intellectual Disability Research, 60, 615-622. (doi:10.1111/jir12285) (PMID:27109143) http://eprints.gla.ac.uk/130172/

Jahoda, A., Melville, C.A., Cooper, S-A., Hastings, R., Briggs, A., Dagnan, D., Hatton, C., McConnachie, A., Williams, C., Jones, R. (2016) BEAT-IT: A randomised controlled trial comparing a behavioural activation treatment for depression in adults with intellectual disabilities with an attention control. Summary of study protocol. Trials, 16, 595. (doi:10.1186/s13063-015-1103-5) (PMID:26714891) (PMCID: PMC4696180) http://eprints.gla.ac.uk/108975/

Cooper, S-A., Ademola, T., Caslake, M., Douglas, E., Evans, J., Greenlaw, N. Haig, C., Hassiotis, A., Jahoda, A., McConnachie, A., Morrison, J., Ring, H., Starr, J., Stiles, C., Sirisena, C., Sullivan, F. (2016) Towards onset prevention of cognition decline in adults with Down syndrome. Pilot RCT. (The TOP-COG study). Trials, 17, 370. (doi:10.1186/s13063-016-1370-9) (PMID:27473843) (PMCID:PMC4966871) http://eprints.gla.ac.uk/122570/

Mackay, D.F., Smith, G.C.S., Cooper, S-A., Wood, R., King, A., Clark, D.N., Pell, J. (2016) Month of conception and developmental disorders: A record-linkage study of 801,592 children. American Journal of Epidemiology, 184(7), pp. 485-493. (doi:10.1093/aje/kww096) (PMID:27651381) http://eprints.gla.ac.uk/131987/

Osugo, M. Morrison, J., Allan, L., Kinnear, D., Cooper, S-A. (2016). Prevalence, types and associations of medically unexplained symptoms and signs. A cross-sectional study of 1,023 adults with intellectual disabilities. Journal of Intellectual Disability Research, 61(7), pp. 637-642. (doi:10.1111/jir.12372) (PMID:28295826)  http://eprints.gla.ac.uk/138876/ 

Jacobs, M., Cooper, S-A., McGowan, R., Nelson, S., Pell, J. (2016) Pregnancy outcome following prenatal diagnosis of chromosomal anomaly: a record linkage study of 26,261 pregnancies. PLoS ONE,  11(12), e0166909. (doi:10.1371/journal.pone.0166909) (PMID:27907018) (PMCID:PMC5131975) http://eprints.gla.ac.uk/132800/

Simpson, N., Mizen, L., Cooper, S-A. (2016) Intellectual disabilities. Medicine, 44, 679-682. https://doi.org/10.1016/j.mpmed.2016.08.008

2015

Finlayson, J., Jackson, A., Mantry, D., Allan, L., Smiley, E., Morrison, J., Cooper, S-A (2015) The Provision of Aids and Adaptations, Risk Assessments, and Incident Reporting and Recording Procedures in Relation to Injury Prevention for Adults with Intellectual Disabilities: Cohort Study. Journal of Intellectual Disability Research, 59, 519-529 (doi:10.1111/jir.12154) (PMID:25073902) http://eprints.gla.ac.uk/96193/

Finlayson, J., Jackson, A., Mantry, D., Allan, L., Smiley, E., Morrison, J., Cooper, S-A. (2015) Types and causes of injuries of carers with intellectual disabilities. Observational study. Journal of Policy and Practice in Intellectual Disabilities. DOI: 10.1111/jppi.12109 http://eprints.gla.ac.uk/106992/

Jahoda, A., Melville, C.A., Pert, C., Cooper, S-A., Lynn, H., Williams, C., Davidson, C. (2015) A feasibility study of behavioural activation for depressive symptoms in adults with intellectual disabilities. Journal of Intellectual Disability Research, 59, 1010-1021 (doi:10.1111/jir.12175) http://eprints.gla.ac.uk/100810/

Mackay, D.F., Wood, R., King, A., Clark, A., Cooper, S-A., Smith, G.C.S., Pell, J.P. (2015) Educational outcomes following breech delivery: A record linkage study of 456,947 children. Journal of International Epidemiology, 44, 209-17 (doi:10.1093/ije/dyu270) (PMID:25613426) http://eprints.gla.ac.uk/104414/

Cooper, S-A., McLean, G., Guthrie, B., McConnachie, A., Mercer, S., Sullivan, F. Morrison, J. (2015) Multiple physical and mental health comorbidity in adults with intellectual disabilities: population-based cross-sectional analysis. BMC Family Practice, DOI: 10.1186/s12875-015-0329-3 http://eprints.gla.ac.uk/110098/