Scottish
Learning Disabilities
Observatory

National Care Service Consultation

The Scottish Government have launched a public consultation on a National Care Service for Scotland. Ahead of what is being described as the ‘biggest public sector reform for decades’, the Scottish Government will be seeking views ahead of the creation of a National Care Service, which will ensure everyone who needs it can expect the same standards of care, wherever they live in Scotland.

More information is available on the SG consultation hub  for people to respond online , and as a PDF on the SG website - A National Care Service for Scotland.   

Easy Read and BSL versions are being prepared, and other accessible versions will be available on request.  Details of engagement events for the public are also on the consultation hub, and there is a mailbox for public enquiries –NCSconsultation@gov.scot

Stakeholder Consultation - tell us what you think of our research outputs

Have your say and help us to improve the way we communicate our research findings. We have put together a very short, five-minute survey with a few questions to help us understand how our research outputs and activities are being used. Find out more and take our short survey. 

Democracy in a Pandemic: Participation in response to Covid

We're excited to announce that "Democracy in a Pandemic: Participation in response to Covid", a new book making the case for a participatory response to crises, will be published on 12th July 2021.  

A blog written by our team members Angela Henderson and Rhiann McLean "Ordinary and Extraordinary Stories: Including People with Learning Disabilities in Policy Development" is published in this book which draws together a diverse range of voices of activists, practitioners, policy makers, researchers and writers.

Further details can be found here 

SLDO film: Reducing avoidable deaths in children and young people with learning disabilities

SLDO researchers have produced a short film which highlights the high rates of death from preventable causes such as choking and chest infections for children and young people with learning/intellectual disabilities.
The film, co-produced with people with learning disabilities and professionals across health, care and research, aims to raise awareness of some key areas for action to reduce avoidable deaths. Watch the film and read more about the research behind it here.

New study looks at the impact of COVID-19 of family carers

A new collaborative study will explore the experiences of family carers of people with profound and multiple learning disabilities during the COVID-19 pandemic and co-design an intervention to support their future wellbeing. The research team involves partners at Queen's University Belfast, Trinity College Dublin, the University of South Wales and the University of Sheffield with Dr Maria Truesdale from the Scottish Learning Disabilities Observatory as the Scottish lead.
Find out more about this study. 

SLDO statement on COVID-19 vaccination priority for people with learning disabilities

We wholeheartedly welcome the decision by the Scottish Government, announced on 22^nd February, to invite all people with learning/intellectual disabilities in Scotland for Covid-19 vaccination as part of priority group 6. We also welcome today’s decision by the UK Government to prioritise all people with learning/intellectual disabilities in England for vaccination. These decisions will bring relief to people with learning/intellectual disabilities and their families.

The Observatory team’s analysis of data on COVID-19 mortality and infection risk for the population with learning/intellectual disabilities in Scotland provided robust evidence to support these decisions. Our recent study shows that compared to the general population, people with learning/intellectual disabilities are at 3 times greater risk of death due to Covid-19, twice as likely to become infected with COVID-19 and twice as likely to have a severe COVID-19 infection.  People with learning/intellectual disabilities already experience significantly worse health outcomes and excess mortality compared to the general population. These inequalities are reflected in this important study.

We are encouraged that the vaccine prioritisation has been amended to include this marginalized population and we will continue to work closely with the Scottish Government and health and care professionals to identify ways to further reduce risk of Covid-19 infection for people with learning/intellectual disabilities. 

We stand alongside our colleagues at partner organisations who have worked tirelessly to influence the decision making around vaccine prioritisation and we recognise their invaluable contribution to ensuring that people with learning/intellectual disabilities receive urgently needed care and protection. We would also like to thank Joan McAlpine MSP, Jackie Baillie MSP and Claire Haughey MSP, Minister for Mental Health, for their work in advocating for the needs and rights of people with learning/intellectual disabilities in Scotland.

Published on 24.2.21 

New SLDO study looks at the impact of COVID-19 on people with learning disabilities in Scotland

Researchers at the Observatory recently conducted a study to look at COVID-19 infection and severe outcomes for people with learning disabilities in the first wave of the pandemic, between January and August 2020.

A summary of the preliminary findings from this study is now available.

Reports & publications

We publish reports relevant to learning disabilities and autism policy and practice.

View our full list of reports and publications here.

E-newsletter

Our e-newsletter is published on a regular basis. If you would like to receive a copy into your inbox, please register below and you will be added to our distribution list for updates.  You can view our e-newsletter archive here.